Monday, July 29, 2013

Four Eyes

Remember last year when Kingsley went cross-eyed and scared the pants off of us thinking there was something major going on and it turned out to be a random thing that corrected itself?


We went to the eye doctor today and turns out he's still doing great, his vision is great, his eyes are healthy, everything is fine still. Same with the girls, 3 kids with 6 healthy, perfectly working eyes. Unfortunate, kind of, since they are so ridiculously cute in glasses...


I wasn't so lucky! It's funny how a lot of people don't know that I wear contacts, considering how bad my eyesight is (-7.00 and -8.00 for real). Sadly, I rarely ever wear glasses. The ones I have are from before I even got pregnant with Rachel, so, I was a bit overdue for a new pair. As always, I have big ambitions to actually wear my new glasses in public. We'll see. ;)

Sunday, July 28, 2013

The Cuz's

July has been a super busy month, due mostly to my sister visiting with her crew. They live way across the country, so we don't get to see them that often. Fortunately, when she does come, I steal her camera card and take all of her pictures so that I suddenly seem way more adept at photography than I really am.

 at the drive-in, while King was trying to escape and roam free in the weeds

 don't you sometimes wish you could still sit at the kid table? 

 I love how this shows their growth with their legs

 movie night!

this picture just makes me laugh, from cross-eyed Rachel to Kamille's gansta face

summer is not complete without a lemonade stand 

I love how these 5 get along like they're always together, they just gel. Something about their ages this visit was just perfect - they never fought. Can't get better than cousin besties. 

Saturday, July 27, 2013

Going Nowhere Fast

*** This is a poop post. The vast majority of you will want to just skip on over it. It's okay. Come back soon, I'll have something less gross to talk about, like swimming or my nieces visiting or anything that isn't brown. For those of you walking this walk, carry on. ;)

seriously, mom, this is so gross

So, the ongoing frustration continues. After being referred to the new GI doctor, I had high hopes about finally coming up with some great plan to deal with bowel business. I spoke with his nurse practitioner who said she wanted us to do a full clean out before the next step. 

Let me tell you, we've done clean outs before, but never to this degree. I wanted to vom on an hourly basis. Once again, both King and I were traumatized by poop. I will spare you the gory details, but Rachel and Cordelia are more than willing to describe the puddles. 

Puddles, people. 

I now have a toothbrush reserved specifically for the task of scrubbing itty bitty crevices in King's wheelchair. 

Anyway, once that was done, we found out the answers we wanted (there are no little caves or cavities made in his colon anywhere created from constipation and holding stale poop for endless amounts of time. yay.) and Kinger was all cleaned out. And then some. I called up the nurse, eager to hear what the next steps would be. 

Give him fibre so he's not constipated. (he's not constipated)
Give him other fibre so his poop is solid (his poop is solid)
[insert review of King's diagnosis and what neurogenic bowel means for him. for the second time since apparently it wasn't written down the first time. reminder that we want surgery. in the meantime, we want something else to do so he's not going all day, every day]
Try to train his bowel to go at the same time every day (November. Every night since November)
Have him sit on the potty multiple times a day (haaaahahahahahahaha!!! 30 min/day, multiple times a day?? good one)
OK, have him sit on the potty in the morning before breakfast, instead of at night (sigh. really? ok, we'll try)
Ummm.... (ummm??)
Maybe when his lower ab muscles are stronger he'll learn to push. (*crickets* uh... yeah and when his leg muscles are stronger he'll learn to walk, right? kthxbai)

And that's where I hung up and put my head down on my kitchen counter and King rolled up and asked me if I was sad. Oh, buddy. 

I don't know where we go with this. No one wants to talk about enema's, no one has any other suggestions. No one other than his urologist and I seem at all concerned that the train doesn't stop. I'm frustrated. 

A couple of interesting things DID come out of this experience though. The first was that just before we did the clean out, King did get constipated. Nothing changed - his diet, his liquid intake, his liquid output, his health, his activity level, his medicine - other than this. It's just one of those odd things that happened, but it's never happened before without some ominous reason.

The other was that Kingsley is acutely aware of every time he poops, toots or has a stomach gurgle. This is also new. He gets a look of absolute panic whenever it happens also, which makes me sad. I'm glad that he's aware of it, so that he can be changed quickly. I am not glad that he is so bothered by it. 

 are you STILL talking about this??

That's it, I'm all done. We have been having a great summer other than this nasty bit. Hopefully, it'll be our only blip! 



Wednesday, July 24, 2013

#Pinterest #Win

Way back last year sometime when I first fell in love with the insanity that is Pinterest, I stumbled upon an upcycled crib that got me giddy. Let me just explain why this is beyond awesome.

First, drop-side cribs that are pretty standard are now banned in Canada. If you have one, you can't sell it and you aren't supposed to use it unless the manufacturers sent you the kit that makes it no longer a drop-side crib, just a giant jail cell with four nailed-in walls. This recall/ban happened when King was a baby sometime and did not phase me in the slightest. For starters - our crib broke the night I put it together when I was pregnant with Rachel (Picture this:  there is a hockey game on TV. A 7-month-humongously pregnant woman is putting together a crib. She asks her heavily distracted husband to just hold the board while she screws in the four screws. He agrees. She screws in one side. Someone scores. He lets go. The board splits. The woman cries. Then the woman calls her dad. He glues it back together. It holds three children because Dad is awesome) so, there was no expectation that we would be able to sell this crib either way. However, there's also no chance of hanging on to the crib for future generations since it's already obsolete. I was just thrilled to have ANYTHING to do with this crib other than the dump.


Another reason this crib was so awesome was that it was turned into a desk that could be set at basically any level. We have such trouble finding tables and desks that are the right height for King. Adult-sized are too high, child-sized are too low for his wheels. At one point, we had even considered having a table custom made for him, just to have one. Colouring, playdough, trains, cars, puzzles, snacks, tea parties - there are so many reasons a child needs a table that they can access. Kinger has become an expert at siding up next to things, but most of the time he just gets frustrated and gives up instead.

Sooo... for the last few weeks my sister has been visiting from BC and her husband came along. The man (thankfully) is incapable of relaxing and vacationing. Instead, he scrubbed windows, cleaned out window wells, mowed the lawn, fixed our gate, and then did the grunt work on this upcycle. The original upcycle had some extra board put over and edging or something... mine is not so fancy. Kevin sanded, primed, and then painted the original board with chalkboard paint. It looks awesome. Today, I put the pieces together and held my breath. There are three levels the board could be at, or there was the option of just breaking out some nails and setting it wherever I want. By some total miracle, the highest level was perfect!

PERFECT height in his stander! 

I don't think this could be a more perfect height for his wheelchair

the girls got super excited when they saw the new desk 

the perfect, accessible tabletop for trains! 

This may be my favourite Pin ever. I am so glad that I held on to it and made this happen. So, parents, hang on to those cribs and give your kids a free desk. Brilliant! 

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