Wednesday, February 2, 2011

Out of Surgery

Well, now that we've gone through it, I can say that so far the detethering is MILES easier than the decompression! Not only was it surprisingly shorter than planned, but Kingsley looks great. After the last surgery, he was so sad looking, so pale and puffy. Tonight, he just looks tired and groggy. I can handle tired and groggy. 

 (it's iodine on his diaper, not poop!)

He's a bit puffy in the face, but not too bad yet. I am sure the fluids and being on his tummy will make it worse  eventually. He was extubated right away, but like last time has developed some stridor (difficulty breathing).  His throat is all dry and raw and he's not completely out of it, so he kept swatting away the tube with humid air. As a plan B, they put this cute little box over his head that has humid air pumped into it. It didn't seem to bother him. My baby is in a bubble.


I haven't seen the incision yet as it's bandaged, but it isn't bad looking from what I can tell. His doctor said it's a little bit longer than his original scar. It comes up to about his pant line now, so not nearly as bad as I had envisioned. One loooong bum crack. ;)


Alright, so there are also a few things that are happening that are unexpected and I'm not really sure what to think yet. For one, his toes are wiggling, which isn't new, but they're just wiggling away none stop it seems. Just little wiggles. I'm not sure where I got the impression that he'd be nearly still from the waist down post-op, but I was surprised to hear them say how much his toes were moving and then to see that.


The other thing was sort of big. Oh, Kinger, Mommy's heart cannot take all this back and forth!! We rolled him up on his right side to cath him and while the nurse and Jeff held him up there and I got down to business, Kingsley sort of woke up and got mad. He cried a bit and when he did, his leg moved from the knee, like he was kicking backwards. His thighs were parallel, but his lower leg went back at a 90 degree angle. Jeff and I both froze and I asked if he did it. He said no! Jeff sort of put King's legs straight and a couple seconds later, there it went again. After he was done and back on his tummy, we kept holding his thigh and waiting. He was doing it. He's kicking from the knee. No hip involved, you can feel the hamstring fighting against you. No push back though (quads), but I haven't felt this strong of a movement before from him.


See how his right foot (he's on his tummy) is bent in? He was bringing his foot right up/over to the other leg.

I am very anxious to see what tomorrow brings and after 14 hours at the hospital, I'm looking forward to sleeping through the night for the first time since... well, the last time he was in the hospital. Thank you all SO MUCH for your kind words, your support, you prayers and positive thoughts. I have no doubt that you helped Kingsley sail through the day and I am eternally grateful.

16 comments:

  1. So glad to hear that all went well. I will be home tomorrow. Call when you can. xoxo
    Kisses to my favourite boy!

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  2. Wow!! That is fantastic news!! I am doing a happy dance here for you!! Rockstar is right!

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  3. oh so good! you guys are amazing!

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  4. That is awesome! I can't believe it! SO glad King is doing well in recovery, and also that he is now wiggling from head to toe!

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  5. I've got some major goosebumps and heart-flutterings here!!! AMAZING! I'm so happy it was not as bad as the last surgery and he is already seeming stronger and wigglier!! What a wonderful report so far! So happy for you guys - continuing prayer for his complete recovery and that you'll all be at home doing kick-boxing in no time! ;)

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  6. YAY Kingsley!!! This is all fantastic news! I hope and pray that everything will continue to go well as he recovers. And yay you for a full night's sleep...I think I've had that once or twice in the last 14 months??? ;)

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  7. OH MY KINGSLEY!!!!!!!!!!! Jill, I am so hopeful for you guys! My eyes got all teary just imagining that feeling you must have felt. Continuing to pray!

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  8. Everything sounds Fantastic!
    Oh I am so happy for you guys! And excited about what Kingsley is showing off! I'm so glad he's recovering better than from the decompression. He is looking alot better than last time (tons better!)

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  9. oh my gosh, goosebumps and happy tears here too. Kingsley: you will never cease to amaze all the people around you, I know that for sure. and Jill: you do an incredible job at expressing yourself in the middle of such an emotional rollercoaster. I am praying praying, praying that there are nothing but peaceful waters ahead for all you. the pictures of your little man, priceless, just want to reach him and snuggle him too! Hugs!!!

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  10. Crying many happy tears ! So happy and thank ful for the bestest blog update ever !~ PTL PTL ~GISG ! :) The Nicols

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  11. That is such great news! So glad to hear the surgery went well and was shorter than expected (especially after such a long wait to get into surgery). And the unforeseen positive side effects are great! I hope he is feeling stronger again today and kicking up a storm. Hopefully we'll see you when you head up to the floor. We're here for another few days while we wean his O2.

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  12. Just peeked in to see how Kingsley and you were doing after surgery and OMG! Yay! I can just imagine how it all feels... Go rockstar!

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  13. Yay for Kingsley! Best wishes for a quick recovery. What a strong little man!

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  14. What a tropper lots of prayers you both leave soon!

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  15. He is the bravest little boy! So glad to hear he is doing so well, and his progress already sounds amazing!!

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