Well, now that we've gone through it, I can say that so far the detethering is MILES easier than the decompression! Not only was it surprisingly shorter than planned, but Kingsley looks great. After the last surgery, he was so sad looking, so pale and puffy. Tonight, he just looks tired and groggy. I can handle tired and groggy.
(it's iodine on his diaper, not poop!)
He's a bit puffy in the face, but not too bad yet. I am sure the fluids and being on his tummy will make it worse eventually. He was extubated right away, but like last time has developed some stridor (difficulty breathing). His throat is all dry and raw and he's not completely out of it, so he kept swatting away the tube with humid air. As a plan B, they put this cute little box over his head that has humid air pumped into it. It didn't seem to bother him. My baby is in a bubble.
I haven't seen the incision yet as it's bandaged, but it isn't bad looking from what I can tell. His doctor said it's a little bit longer than his original scar. It comes up to about his pant line now, so not nearly as bad as I had envisioned. One loooong bum crack. ;)
Alright, so there are also a few things that are happening that are unexpected and I'm not really sure what to think yet. For one, his toes are wiggling, which isn't new, but they're just wiggling away none stop it seems. Just little wiggles. I'm not sure where I got the impression that he'd be nearly still from the waist down post-op, but I was surprised to hear them say how much his toes were moving and then to see that.
The other thing was sort of big. Oh, Kinger, Mommy's heart cannot take all this back and forth!! We rolled him up on his right side to cath him and while the nurse and Jeff held him up there and I got down to business, Kingsley sort of woke up and got mad. He cried a bit and when he did, his leg moved from the knee, like he was kicking backwards. His thighs were parallel, but his lower leg went back at a 90 degree angle. Jeff and I both froze and I asked if he did it. He said no! Jeff sort of put King's legs straight and a couple seconds later, there it went again. After he was done and back on his tummy, we kept holding his thigh and waiting. He was doing it. He's kicking from the knee. No hip involved, you can feel the hamstring fighting against you. No push back though (quads), but I haven't felt this strong of a movement before from him.
See how his right foot (he's on his tummy) is bent in? He was bringing his foot right up/over to the other leg.
I am very anxious to see what tomorrow brings and after 14 hours at the hospital, I'm looking forward to sleeping through the night for the first time since... well, the last time he was in the hospital. Thank you all SO MUCH for your kind words, your support, you prayers and positive thoughts. I have no doubt that you helped Kingsley sail through the day and I am eternally grateful.